My whole life I’ve been tough. I’ve weathered thru a lot in my life and it’s always been my sort of badge of honor really. I’ve always experienced the pain of Ehler’s-Danlos syndrome although I was never really sure what to call it. My parents would call it growing pains while my teachers would see it as an excuse for me to not try harder in gym class. I can’t even remember how many times I was told to “suck it up” or “walk it off”, which I did so happily. I guess I always assumed I wasn’t alone. I wasn’t really different from everyone else. There was no way for me to know that everyone didn’t experience the same pain. I still don’t see myself as different but that’s becoming harder and harder to convince myself of.
It seems as though everyday there is a new problem that comes up. Lately my stomach has been a real problem for me. Everything I eat and drink makes me sick to my stomach even though I eat a very healthy diet. Yesterday I had an endoscopy done and thankfully nothing was found wrong with my stomach. Although finding nothing is a great thing it's hard to hear the same answer over and over again, "Unfortunately that's Ehler's-Danlos Syndrome." Eventually it kind of starts to make you angry. I don't just wanna sit and feel like crap for the rest of my life and I'm determined to do something about it. When I find that something I will let you know! All and all I am very blessed. I have great friends and a wonderful husband and family. I just wanted to share my experiances and hopefully help others!
